Flemish Alzheimer’s League

What is it?

Within the Flemish Community, we organise and support (young onset) dementia family groups where family members and carers of people with (young onset) dementia can exchange information, experiences and mutual support. We also encourage, support and/or organise other activities to support those involved. Additionally, we raise awareness of the possibilities and limitations around dementia. Finally, we promote scientific research into dementia and into support for the carers and family of persons with dementia

In specific terms, this means that a person with dementia who is being looked after by the neurologists or geriatric specialists in the hospital, and their carer, are informed about the Alzheimer’s League, how it works and what it offers. Information leaflets about the patient association are available.

Who is it for?

Persons with dementia.

Apnoea Association Flanders

What is it?

Apnoea Association Flanders (non-profit organisation) is an organisation for apnoea patients in Flanders that aims to share information and experiences.

Members pay an annual membership fee to support the operation of the association:

  • they receive the three-monthly magazine ‘ApneuKrant’ as well as the ‘ApneuMagazine Nederland’, the comprehensive magazine of the Dutch Apnoea Association.
  • they participate, free of charge, in patient meet-ups and webinars that feature speakers about subjects that relate to sleep apnoea.
  • they have access to the information on the website that is limited to members and friends, such as the digital version of the ApneuKrant and ApneuMagazine.
  • they can post responses to message on the website where this function is available.

In specific terms, this means that a person with sleep apnoea who is being looked after by the pulmonologist or neurologist in the hospital is informed about the relevant patient organisation. Information leaflets about the patient association are available.

Who is it for?

Persons with respiratory sleeping problems.

Back on Track

What is it?

The Back on Track Fund helps cancer patients take action to regain control of their own lives!

After the shock of a cancer diagnosis and going through difficult cancer treatment, you suddenly have to pick up the threads of ordinary life again. Although this transition, from active treatment to a life after diagnosis, is very important for the long-term prognosis of the disease, you are suddenly on your own.

The people close to the patient can find themselves in a similar vacuum. Their lives too have been played out in existing care facilities and a social safety net for a considerable length of time, which suddenly disappears after the sometimes lengthy period of treatment.

The Back on Track Fund aims to fill this gap. In this way, we want to create sustainable support and a constant value in the continuity of care for (ex-)cancer patients and their loved ones.

Who is it for?

Persons with and after cancer.

Click here for more information about the initiatives.

Braille League

What is it?

The Braille League:

  • provides life-long support for blind and partially sighted people (if they so wish) to assist in their inclusion in society.
  • offers their expertise to politicians, public figures in social and cultural life and the public at large who promote the inclusion of blind and partially sighted people at all levels of society.
  • supports technological, operational, and scientific or ophthalmological research.

It does so for the whole of Belgium!

Who is it for?

Blind or partially sighted people.

COPD non-profit organisation

What is it?

  • Informing patients and their families about the disease and its consequences in an understandable and recognisable manner.
  • Offering a safe space where patients and people in similar situations can exchange experiences but also organise enjoyable activities.
  • Promoting awareness of the disease, promoting social awareness, understanding and attention for COPD through the media and through a range of activities.
  • Forming a pressure group to influence the political agenda and decision-making, independently from physicians and the pharmaceutical industry.
  • Creating a target group in which people are motivated to engage in activities and provide donations and other forms of charity to help support COPD-related projects and research.

Who is it for?

Persons with COPD.

Flemish Celiac Association

What is it?

The objective of the association is to promote the physical, mental and social well-being of patients who have coeliac disease and/or dermatitis herpetiformis and related conditions. It has the following objectives:

  • Establishing contact between coeliac disease patients or parents of coeliac patients through a three-monthly magazine, regional meet-ups, an annual member day with additional activities and a discussion forum;
  • Publicising gluten-free products and promoting their distribution;
  • Creating and publishing recipes for gluten-free cooking and baking;
  • Publishing useful addresses of e.g. health food stores, hospitality businesses and specialised dietitians;
  • Raising awareness of the concepts of ‘coeliac disease’ and ‘gluten-free diet’;
  • Publishing medical and dietary information relating to coeliac disease and gluten-free diet;
  • Representing the interests of coeliac patients to the government and health insurers.

In specific terms, this means that a person with coeliac disease who is being looked after by the hospital’s gastroenterologists is informed about the relevant patient organisation. Information leaflets about the patient association are available.

Who is it for?

Persons with gluten intolerance or coeliac disease.

Deinze Stroke Care

What is it?

Deinze Stroke Care is a patient group that offers help and advice and where the patient and their carers are central to all they do. Participation provides access to expert advice, a listening ear, social support, relaxation and enjoyable company and just an opportunity to go out. We meet up every two months in the LDC De Bosrank in Deinze. This groups is affiliated with the Belgian Stroke Council (www.belgianstrokecouncil.be).

In specific terms, this means that a CVA patient being looked after by the hospital’s neurologists is informed about the relevant patient organisation. Information leaflets about the patient association are available.

Who is it for?

Persons who have had a stroke (CVA or cerebrovascular accident).

Contact details

Miriam Mathijs
tel: +43 (0)476 33 70 65
e-mail: myriam.mathys@telenet.be

Diabetes League

What is it?

500,000 people in Flanders have diabetes. Every seventeen minutes, somebody is diagnosed with diabetes.

That is why the Diabetes League informs, connects and mobilises everybody who is faced with diabetes. As an independent organisation, our objective is to work to achieve good quality lives for people with diabetes, together with people with diabetes, the people around them, the care providers, our members, our volunteers, etc.

Who is it for?

Persons with type 1 diabetes and type 2 diabetes.

Flanders Centre of Expertise on Dementia

What is it?

The Flanders Centre of Expertise on Dementia and the regional centres of expertise on dementia want to offer people with dementia and the people around them a point of contact, when required, where questions are acknowledged, answered or referred to the correct contact against a background of expertise. They want to provide people with dementia and their carers with opportunities for exchanging information and experiences, or facilitate these.

Who is it for?

Persons with dementia.

Hartvrienden (Friends from the Heart)

History and mission

Inspired and supported by the cardiac rehabilitation team, some cardiac patients took the initiative to meet outside the physiotherapy room for a pleasant and health-promoting get-together.

The following ideas came out of the tips box:

  • organisation of an annual 'Party of the Hearts';
  • hikes;
  • cycling tours: a-team and b-team.

Participation is restricted to all cardiac patients of Maria Middelares General Hospital, alone or together with their partners.

Contact

Are you interested? Please contact:

Mr Etienne van Rijckeghem
Tel.: 0473 99 95 76
Etienne.van.rijckeghem@gmail.com

Mr Raoul Lobbens
Tel.: 0475 70 24 06
Raoul.lobbens@telenet.be

Mr Laurent Van Rentergem
Tel.: 0485 44 38 80
Laurentvanrentergem@gmail.com

Ms Evelyne De Vogelaere: physiotherapist for cardiac rehabilitation at Maria Middelares General Hospital
Tel.: +32 (0)9 246 99 01

The Fight Against Cancer

What is it?

Our dream? A world without cancer. Until then, we avoid and fight cancer and alleviate its burden. In addition, we employ our expertise to achieve better cancer-related policies. To achieve all of this, we mobilise as many people as possible to join our fight against cancer.

In specific terms, this means that a cancer patient who is being looked after by the hospital’s oncologists is informed about The Fight Against Cancer, how it works and what it offers. Together with The Fight Against Cancer, a variety of initiatives are started each year.

Who is it for?

Persons with cancer.

Click here for more information about the initiatives.

Flemish MS League

What is it?

The Flemish MS League wants to give meaning to MS in life, help all people with MS and their loved ones gain insight in and deal with their condition, support them as individuals and as a group and represent their interests, so that people with MS can lead a human and good quality life, just like everybody else.

Patients can make an appointment in our hospital with a representative of the MS League.

Who is it for?

Persons with multiple sclerosis.

Scharnier non-profit organisation

What is it?

The Scharnier non-profit organisation gets its name from the Dutch word ‘scharnier’, which means 'hinge' but also includes the word 'kidney'. The word 'kidney' covers all our kidney patients: dialysis patients and transplant patients. The word ‘hinge’ stands for connection, a pivotal point. The dialysis is in itself a link between the kidney patient and the surroundings. Dialysis is also a link between kidney patients and transplants, hope for new life. The dialysis department remains the home base for patients, where they can always seek advice and guidance together with their families.

The board consists of physicians, nurses and patients.

How it works

  • (Bi-)annual day trips, patient parties, weekends, trips abroad.
  • Birthdays and anniversaries are celebrated.
  • A small gift during the end-of-year celebrations, at Easter and St. Nicholas.
  • Annual pilgrimage to Lourdes-Oostakker.
  • Annual ‘tour of Ghent-Bruges' by the patients on bed bikes.

For the family

A back-and-forth booklet in a hinge pouch with an informative brochure.

Sponsoring events

Sponsorship promotions are launched regularly; these make it possible to offer all these activities at low cost. A chicken festival is organised every two years.

Website

Look at the website of the Scharnier non-profit organisation

Horizon magazine

'Horizon' is a magazine issued every three months by the Federation of Belgian Associations for Renal Failure. It contains interesting information and documentation about renal conditions and treatment, written with the kidney patient in mind.

You can subscribe or renew your subscription via the non-profit Scharnier.

Step by Step

What is it?

  • Support group for people who have had a stroke (CVA or cerebrovascular accident).
  • Every two months, there is a meeting lasting 3 to 4 hours, on Saturday afternoons.
  • Enjoyable company, presentations, outings, dinners, etc.
  • Objective: to try and make the consequences of a CVA a bit more bearable by meeting with others who are going through the same experiences.

In specific terms, this means that a CVA patient being looked after by the hospital’s neurologists is informed about the relevant patient organisation. Information leaflets about the patient association are available.

Who is it for?

  • Persons who have suffered a stroke or cerebral thrombosis.
  • Also for their partners and other interested parties.

Contact details

Telephone: +32 (0)9 226 84 60 or +32 (0)475 71 82 86
Email: willy.devriesere@skynet.be or tania.sucaet@telenet.be

Foundation against Cancer

What is it?

The Foundation against Cancer plays an important role in three areas, in a fully independent and transparent manner:

  • the science
  • support of patients and their families
  • detection and prevention

In specific terms, this means that a cancer patient who is being looked after by the hospital’s oncologists is informed about the Foundation against Cancer, how it works and what it offers. Together with the foundation, a variety of initiatives are started each year.

Who is it for?

Persons with cancer.

Ostomy Ilco non-profit organisation

What is it?

First and foremost, Ostomy Ilco wants to help ostomy patients get back to their ordinary lives. If possible, they try to provide assistance before the surgery. They want to realise this by providing information about ostomy care and by providing social and psychological support.

In specific terms, this means that an ostomy patient who is being looked after by the hospital’s abdominal surgeons is informed about the relevant patient organisation. Information leaflets about the patient association are available.

Who is it for?

Persons with an ostomy (parastomal hernia and parastomal hernia repair).

Meeting Point Self Help (non-profit organisation)

What is it?

Meeting Point Self Help is a support and expertise centre for self-help groups in Flanders. It provides an overview of patient associations and self-help groups.

Who is it for?

For anyone who is searching for a patient association or self-help group.

Massage therapy

What is it?

Massage therapy involves gentle, safe massage that is tailored to the needs of people who have cancer or another serious disease. This relaxing massage can be applied at every phase of the disease process (during treatment, recovery or in a palliative setting). massage therapy offers a a natural and pleasant way to alleviate health issues.

IKG collaborates with the non-profit organisation for massage therapy. Cancer patients have the opportunity to receive massage therapy during their hospital stay.

Who is it for?

Persons with cancer.

Click here for more information about the massage therapy.